At RunWithLiam Rare Ministry, we believe that no family should face the challenges of a rare disorder alone. We are a nonprofit organization dedicated to supporting families with children who have rare and often misunderstood medical conditions. Our mission is to provide hope, resources, and a community of care where families can find strength, connection, and guidance.

RunWithLiam Rare Ministry was founded by the McDonald familiy who knows firsthand the struggles of navigating life with a child affected by a rare disorder. We understand the uncertainty, the countless medical appointments, and the emotional toll that can come with seeking answers and care. What began as a small group of parents sharing experiences has grown into a supportive network working to empower families across Tennessee.

Support Services – We offer peer-to-peer connections, support groups, and individualized assistance to help families cope with the daily challenges of rare disorders.

Resources & Advocacy – We connect families with reliable medical information, educational tools, and community resources, while advocating for increased awareness and better healthcare access.

Community Building – Through events, workshops, and family gatherings, we create safe spaces where children and families can build friendships and feel less isolated.

Awareness & Education – We work with schools, healthcare providers, and the public to raise awareness about rare disorders and the unique needs of families living with them.

We envision a world where every child with a rare disorder can thrive, and every family has the support, knowledge, and community they need.

Whether you’re a parent, caregiver, medical professional, or supporter, you have a place here. Together, we can bring comfort, advocacy, and hope to families navigating rare disorders.