2026 US Kleefstra Conference

Join us for an inspiring gathering of families, researchers, and clinicians dedicated to Kleefstra syndrome. This conference is a unique opportunity to connect, learn about the latest scientific advancements, and share experiences within our community.

August 6 - 9 2026

About The Event

Join leading researchers, clinicians, and biotech industry experts for two days of rigorous scientific exchange dedicated to accelerating treatments and improving care for the Kleefstra syndrome (KS) community. This specialized track will dive deeply into the latest preclinical models, clinical trial readiness, and emerging therapeutic pipelines. Attendees will have the unique opportunity to collaborate on actionable roadmaps, share updates on cutting-edge gene and drug therapies, and explore new paradigms in biomarker discovery.

Details available here.

Run With Liam Rare Ministry Inc. www.runwithliamrareministry.org